I would have asked questions about the potential of starting the diet with an infant and how to convince doctors to consider it, when they have little to no experience in it. As far as food, she’s had chicken and turkey for protein and olive oil, butter, heavy cream, avocado oil and mayonnaise for fats. Her cholesterol came back high from a recent blood test so I’m avoiding butter and heavy cream for a bit. Overall, you will need to adjust, adjust, adjust and with some patience and vigilance you can be successful. At the end of the day though the goal is seizure control so if that cannot be achieved with nursing your next step would be to switch to pumping and using expressed human milk as part of the ketogenic formula. Keep in mind that human milk is a combination of foremilk and hindmilk. The foremilk is the first milk that is released and contains more water and less fat. The hindmilk is the milk at the end of the feed and is higher in fat. One way to try and get a higher fat human milk is to have mom pump for 3 to 5 minutes to release the foremilk.
There is also some evidence to support anti-inflammatory, anti-microbial and anti-viral properties of MCT oil but those are hard to measure in a clinic setting so I really focus on constipation, ketone production and carnitine deficiency. Often I’ll look for vegan keto recipes and get ideas that I can add protein into and stay within our macros. If I find something I’d like to try that has dairy then we have to find alternatives. I search https://best-keto-supplement.com/ many sites for new products and I’ll ask my local grocery store to carry them or order some for us to try. Be sure you are only snacking when you are truly hungry and not due to other factors such as emotions or boredom. If you are hungry and need a snack, nuts seeds, avocados, or cheese are great options. Focus on small portions of these foods and giving yourself enough time after eating to feel satisfied before going back for seconds.
The taste is stronger so some children prefer it mixed with ground beef but it is quite palatable. In my own son we were able to raise his carnitine levels to within normal range in 2 months by just adding lamb into his diet. A free carnitine level below 24 is generally considered deficient. His level improved to 48 umol/L after 2 months of focusing on lamb intake at least 4 times week (each serving being 1.5 oz). Once I saw this I began https://www.dietdoctor.com/low-carb/keto/exogenous-ketones to share with other epilepsy parents and many of them have had similar results. One parent reported the free carnitine level going from 14 umol/L to 27 umol/L in less than 2 months. Another parent reported going from 6 umol/L to 30.5 umol/L in 3 months. We were told that Carnitor was the best way to treat my son’s carnitine deficiency. Although I had my doubts we followed the recommendation with my son’s best interest in mind.
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One tablespoon of the maple vanilla syrup is 32 calories and 15 grams of total carbohydrate with 14 grams of fiber so technically only 1 gram of net carb. Be cautious of not counting any of this fiber towards your carbohydrate limit. While subtracting a few grams of fiber generally doesn’t cause any issues with ketosis, a large amount of fiber may interfere. Check with your keto team on their thoughts about products with large amounts of fiber. You may be advised that this product is not appropriate for your individualized keto 6x side effects plan or to subtract only a certain percentage of the fiber. The problem lies with the fact that “keto” is not a standard term -there are no requirements for what this term does or does not mean. Keto in general certainly means low carb but it does not specify if the product is actually high fat or if the “net carbs” listed are a subtraction of fiber only or fiber, glycerin and/or sugar alcohols . Personally, I am surprised at the animosity some influencers/physicians/nutritionists have against the diet!
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Alright so first let’s evaluate the nutrition of these low carb ice creams. Well at least not as is… They don’t have enough fat and if you subtract only fiber they might not fit into your keto plan. The lowest carb option subtracting fiber alone is the Halo Top at 12 grams net carbs and it’s 8 net grams if you subtract both fiber and sugar alcohols. We have found tons of alternatives to some of our favorite foods so that Xavier always feels included.
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A few days after starting the supplement he began having seizures again although we had been seizure-free for months. While trying to figure out what was going on I found several sources that said that seizures were a common side effect of Carnitor. There were other factors around the same time so I can never say that the Carnitor was in fact what brought back his seizures but I have serious mom guilt over it. They have a lot of different options and flavors including vanilla, maple pecan, peppermint, blueberry, strawberry, caramel and more. Each bottle is $5.99 to $7.99 and contains Tablespoon servings. Unlike most sugar-free syrups, these products do not contain any artificial sweeteners or sugar alcohols.
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They seem almost angry that anyone would consider keto as an option. It made me pause for a moment and think “Did I just ruin my kid’s health forever by putting them on this diet for their epilepsy? Hundreds of seizures in a day is nothing that these experts have witnessed, and they certainly haven’t witnessed the positive effect from the diet. I will never regret the diet that saved my daughter’s life. Instead I hope to learn more about it, find ways to better utilize it, and help further research that we can use to promote the best possible outcomes. Another option would be to purchase a MCT oil manufactured by a medical food company such as Liquigen® or BetaQuik® . Not only are these products manufactured by trusted companies but the products are also emulsified. Emulsified products stay in solution – so you can avoid that separation you commonly see if you mix oil into other foods. So those are 3 common reasons I use MCT oil in my practice.